So sorry I have been absent lately. My husband and I moved last week and it has been crazy.
I have now done three remicade infusions. I love the results I’m seeing. I will post pictures if I am feeling brave. I am going for infusions every six weeks. Much more dramatic improvements than I ever saw with humira.
How is everyone else doing???
Anonymous asked:I am a 50 yr old women I have had this skin issue at the age 14 and now having breakouts again I did have shots that kept them at bay when I had the shots no breakouts for almost a yr and now they are starting and I can not afford to see a dr
I am curious what shots you had. Comment back and let me know. It is such an expensive disease. I hope you get relief soon. It can take such a strain on finances I sure do understand that!!!
Anonymous asked:Do you know if any one with HS was about to have sex with a guy and the guy denied her because of this disease? I am scared this would happen to me in the future :(
No. It is not contagious. I would have the conversation long before becoming intimate with someone. If they do not understand and are not supportive than it is their loss. HS does not make you any less worthy of love and never let anyone make you believe that.
Anonymous asked:Hi. Your blog is very inspirational to me. Lately, I've been researching and the symptoms of HS seem to fit what I have. I developed abcesses mainly in my neck, armpit, butt tocks and the back. It has been happening since I am 15. I'm now 20 and I believe I have HS. I'm tired of doctors just telling me I have bumps and that's all.
My advice to you is to go see a dermatologist. Usually doctors at university or teaching hospitals are more up to date and willing to learn, in my experience. I hope you can find a doctor to help you, I know how frustrating it is. It took my almost three years to find one who even knew how to correctly diagnosis me.
Good luck and thanks for the compliment on my blog. I am here if you need to vent or need support.
Had my second remicade infusion today. I feel very tired but overall good. I have noticed a lot less drainage since I have started remicade and am hopeful for what’s to come.
I have another four weeks before my next infusion.
Anonymous asked:Hi, I was diagnosed with HS in 2012 and told, when you have a boil / abscessed cyst get in touch with me and I will call you in a steroid and antibiotic (zpac). After a few days if not better, come in and we will lance or take you into O.R. to remove. Now it's 2014 and after multiple lancing / O.R. procedures this last one took the cake! A pilonidal cyst. Horrible. I went to the Dermatologist today and she recommends Accutane. Have you tried Accutane and do you think it's worth the risk?
I took accutane before I had hs. It had horrible side effects for me. Not sure the success rate with hs, but I have had luck with biologics like humira.
Just did my first remicade infusion. It went well. The nurse said she has other hs patients that have seen improvement. It was way less painful than a humira injection!
Anonymous asked:Try Vitamin K I have this and I discovered that being healthy and taking vitamin K does work for me. I it may work for you too. I as long as I am eating green leafy vegetables, I do not get this problem which occurs in my anogenital area (groin) and Anus.
I have not tried vitamin k. How do you use it?
Anonymous asked:My beautiful daughter at the ripe age of 13 has recently been diagnosed with HS. Do you know if acupuncture or anything natural helps these bumps from recurring? Her doctor said Humira could be a possibility. I appreciate any input that you can give and am so happy to have found your blog. Thanks, Mark L.
I have not tried acupuncture but I do know that if hs can be treated earlier it’s better. I am sad for her because I understand the daily struggle. I hope you can find a good dermatologist, don’t stop looking until you do. All the best.
Anonymous asked:I've suffered with HS for about 10 years, searching for effective treatment from Bactrim (to help infection) to laser treatment (effective at management, but not prevention). I wanted to share a study done in Nov. 2013 which showed a connection between HS flareups and the inclusion of yeast and wheat in the diet. I eliminated these from my diet 3 months ago, and I haven't had any flareups since. Just wanted to share, as this may help others with HS.