Has anyone tried coconut oil for their hs infected areas?
Anonymous asked: Has anything ever helped you? The pain is so bad, and it is such an ugly disease.
I just made a post about this :) I get asked it a lot. It gets better. There are good and bad days but you have to keep your head up!!
Things that have helped me
Hibicleanse soap. It’s inexpensive and keeps your infected areas clean.
Panoxyl. This is another soap I use. It is for acne and helps with the hs inflammation.
Water. Drinking tons of water really helps.
Baby wipes. I use these all the time to clean my arms.
Turmeric. I don’t take this now but did before humira and it helped.
Biotin. Great for your overall skin health.
Cotton/breathable clothes always feel better and make the skin less irritated.
Prid. This is drawing salve and when I have an abscess coming to a head it works wonderful for relief.
I’m sure there is more I can’t remember. Please share with me what helps you!!! If it’s medication, diet, products. Whatever — please share.
Has anyone heard about this hidden plague book about hs coming out??
wingsmadeoftin asked: Hey, someone else just messaged you that has HS and a gluten issue? That's weird, I have HS and Celiac. For the record, gluten is found in any foods that have wheat, barley, or rye. It ends up in more things than you'd think -- bread, noodles, sauces... no more pizza, sandwiches or burgers, no more pasta, no cake... You have to learn how to cook everything all over again!
Ya it would be a huge diet change. Thanks for the info.
7down43togo asked: What anti-biotics have you taken? Or what medicines?
Doxycycline is what I take now. I have taken many antibiotics I don’t even remember all of them. Minocycline worked well for me but became too expensive then.
wingsmadeoftin asked: Unfortunately, going off of gluten did nothing to improve my HS, though it did certainly improve the damage done by Celiac Sprue. Oh well ~~
I feel like everything works differently for everyone. I don’t think I can do gluten free and I feel like its kind of a trend and maybe not really important.
persnicketyknickers asked: About your dress problem! Maybe your skin tone is close to the colour of moleskin bandages? It's like the sticky part of a bandage without the cotton part so it's not all bulky. That should work kind of like concealer and prevent leakage but not if you're going to be busy for hours and hours and hours.
Ya that’s a good idea. I just went with it for the wedding and ended up being fine.
n0t-a-hipster asked: hi i'm pretty sure we talked before. i am the 13 yr old, well actually 14 now but the hs in my arm went away and then came back along with it being in my groin. Is losing weight able to help because my doctor says too but have you tried and will it help. (I eat healthy when I can and dance 5 and a half hrs a week) sorry if this seems confusing
I have not lost a significant amount of weight so I’m not sure. Sorry. I am working at that but it’s a process.
I have been on humira about 8-9 months. At first I was getting better but now I feel no progress. It is so frustrating. I just want to feel better. I have tried so many things and I am so frustrated.
The humira is expensive and the shots are painful. It also sucks having a compromised immune system. I have been battling an on and off cold.
I don’t want to sound so negative about the humira. I just probably had higher expectations than what was realistic. It is better some days. My arms are still not healed though.
ktmchick asked: I guess my first message had not gone thru! Anyways, I have read that there is a link from HS to gluten allergies/celiac disease, which I recently discovered I have a gluten allergy. So since I went gluten free, my boils and cysts have stopped! As a test to see if it wasn't just a coincidence, I purposely went off of my GF diet. And within 2 days I had 3 boils pop up. So I def believe that gluten has something to do with it, of course thats not the case for everyone. Just wanted to share that :)
Thanks for sharing! That is one thing I have not tried. How big of a change did you have to make To go gluten free? I am completely unaware of what foods have gluten!